Diabetes clearly does not know the difference between a work night and a ‘no worries flunked pancreas, I’m home all day tomorrow with absolutely nothing to do but put my feet up and tend to the mass destruction you unleashed’ night. Nope. It does not perceive this small but plain as nose on face difference. We must agree to disagree.
Below you see a snapshot of my not so great day in diabetes world. It's not all rainbows and sunshine, no matter how normal/awake/'nothing wrong with her' I may look.
So, last night, I decided a brioche hot dog bun + side of chips + really tiny portion (I swear!) of ice cream + half a flake bar - right after a pump set change, was a smashing idea. Couldn't think of a better one, in fact.
After a set change, I seem to be completely carb intolerant for the first couple of meals, which my Endocrinologist has never heard of. I received the ‘Oh, wow, she must have just read this on the internet somewhere’ look when I asked if this was a common problem and what did she recommend I do?
Fortunately, there is a whole community of people with diabetes (PWD’s) who know differently. And we’re at the sharp end. I am always comforted to know there are others out there who share the same issues.
I found out - some people leave their old set patch on for an hour or so, because when you take it out you get a pool of insulin on a mission to escape your body. OH BOY, would I like to join it sometimes!
But this didn’t make much of a difference for me.
Others say it’s because the new site is not prepped yet and a ‘pool’ of insulin works best. The fresh site is like a sponge, needing a good soak before it will spill over. This takes a few boluses (this is what we call the insulin we take before we eat).
Or, it’s the shock factor of a new site and more antibodies are thrown its way to try and scare the insulin away. Who knows, but quite a bit of extra insulin is the only thing that works for me. Your diabetes will definitely vary, so please don’t copy anything here. Always speak with your Diabetes Specialist.
Last night, for some reason only known to my bust-up pancreas shaped friend, my blood sugars saddled aboard a crazy breakneck bronco-ride up to the dizzy heights of 15mmol/L (270mg/dL) and refused to be wrangled.
Fear of sleep is a probable life saver in situations like this, but I had to be up at 5:30am for work this morning! Real work for a real paying customer, expecting my brain to actually function. Barry also had to travel up to London, all across London, through London, around London (did I mention London?!) then home, followed by a 4 hour drive up to Manchester this evening. Diabetes you really know how to pick your moments.
I was terrified of diabetic ketoacidosis (DKA) and found my mind plotting my dramatic demise. I am often impressed at how imaginative I can be in the wee hours.
My Dexcom, lifesaving little black box of noisiness, was not the most popular machine as it beep – beep – beeped all night long.
I finally caved and injected 3 units of insulin, counting how many blood sugar decimals this dose could potentially swallow up. Gulp! My Dexcom was sure to beep if it went low, right? Within an hour, the arrows on Dex had turned on their heels, to indicate a gradual descent.
I managed a good 3 hours solid sleep after this, thank you very much diabetes technology. Enough to make it through today with at least one eye a few millimetres open at all times. No one ever noticed a thing.
My set change turned out to look absolutely fine. Of course, I'll never know for sure. I removed it the following morning to have a peek. It all seemed fine and dandy. Then of course, I mentally beat myself up because I had to go through the whole new set and extra insulin palaver again!
But this time the brioche, chips and ice cream were tucked up safely at home.
Set changes - just know you cannot keep me from the carbs for very long.
Home. Dinner. Bed.
For transparency please note: alarm clock photos, showing the various unearthly hours I spent staring at it, were shot the following day and not during this crisis.
*This is not a sponsored post.*